I have had to call on many of those memories lately. The minute I am about to lose hope. I'm talking seconds away from "rock bottom", the tables have turned(or at least shifted), and I am given my second, third, fourth, etc ounce of hope again. My faith in humanity gets restored, even if only for a while. I have no explaination for it, no rhyme or reason, just pure dumb luck. Without it I would have been gone years ago. "Sure as shit". Please excuse my language, but I would have never made it to 30 years old. That's for sure. Either someone wants to see me suffer through this life, or my Grams, Gramps, my aunt Sister Pat, and those whom have passed before me are "pulling the strings" up there and keeping me on my "game". They must see something in me I haven't been able to see in a long time now. My family has always been a bunch a tough "old birds". It's not easy to take one of us down! I won't back down. I've said it before, so I might as well say it again. I'm gonna go down swinging! Never without a fight!
So many supporters from all over the nation/world have offered me encouragement. What kind of coward would I be if I let all of those people down? I cannot, and I will not do it. I am so unbelievably grateful that I have a match lined up for my bone marrow/step cell transplant. I hope and pray I will be able to get the funding required to begin the process of procedures needed before my health deteriorates further. If my condition worsens, who knows what the outcome may be. It my be beyond the point of repair. Between all of my current medical bills, the pre-procedure costs, the transplant, and post procedure care...the numbers are alarming!!!! It's terrifying! I had absolutely no clue how much of an epidemic this has become in America. Too many people die because they cannot afford the care they need! Too many people get disability when they don't truly need it, and people like me suffer without any form of financial aid! It makes my stomach churn! We are familiar with the costs and uncertainties of healthcare and medical costs. Everyday there is another hurdle to overcome, another hospital/doctor's office bill and they all become more frightening than the day before! The laws are ever-changing and the fine print gets longer and longer. More rules and regulations and many more hurdles to jump. With all of my current medical bills, the pre-procedure costs, the transplant, and post procedure care...the numbers are alarming!!!! It's terrifying! I honestly don't know if I find a facility, funding, etc if it will be a success for not. Nothing in life is guaranteed, especially when it comes to healthcare. My husband and I don't have that kind of money to gamble with. We cannot keep relying on family and we cannot have fundraisers constantly. I hate feeling like a charity case, but my options are very limited. It makes me feel very weak and a kind of like a loser.
The most difficult part about dealing with a serious illness is the isolation. Not many people want to "hang out", or "party" with a cancer patient. It's even more difficult now being 1,000 away from my husband. I currently need 24 care because of my serious aniema condition and my the spread of my cancer. We are also visiting other multiple hospital and cancer centers to find the best place for my treatment. If I do find the proper facility in the Midwest, it will keep me away from my husband and the home we built the together even longer. I'm not sure I can do that, but living off of only one income that is our only option. I never knew I could miss someone so much. I miss my little family(Jeff, Milo & Buckley)it hurts! Cancer hurts, but it doesn't compare to the heart break of being away from my boys.
The things I miss the most:
- Holding my Husband's hand
- The fact that he let me hug him as long as I need/want to
- Falling a sleeping in my hubby's arms
- Dancing to "our" song randomly in the kitchen, or living room
- Going on "dates"
- Feeling powerful, not powerless
- Falling a sleeping in my hubby's arms
- Dancing to "our" song randomly in the kitchen, or living room
- Going on "dates"
- Feeling powerful, not powerless
- His loyalty
- His unwavering love
- His huge heart
- They fact that he thinks my "crazy side" of my personality is cute & fun
Cancer changes every aspect of your life physically and emotionally. Some days it's difficult to get out of bed, others you just have to take one day-at-time. It's the little thinks that bring happiness. The smallest gesture can change the mood of an entire day. Having someone there to hold your hand or give you a hug when there are no words to be said. The hug, or a friendly caring touch says it all.